Hannah got meningitis in October 2020. It started with an ear infection, which turned into viral, and then bacterial, meningitis, and she spent two weeks in hospital, during which time she had a lumbar puncture, or spinal tap. Doctors told her she would be ok, but she was left with persistent, debilitating headaches. She could barely walk or even stand, and she spent several months “lying in a dark room, all day, all night, on a lot of morphine”. She wondered why, if her “medical” problem of meningitis had been solved, she was still in chronic pain.
“I thought, okay, so I have had meningitis, there is no dispute about that,” she said. “But why did my body respond so aggressively to an ear infection? Normally you get an ear infection and you'll be fine with some antibiotics. What else was going on at the time? The more I read, and the more I learned, I realised that there was a huge element that needed to be addressed.”
There was, Hannah realised, “a lot going on” at the time she contracted the ear infection. She was living through the Covid pandemic, an unprecedented and enormously stressful event. She had been locked down separately to her partner, and had also had to postpone her wedding, which had been due to take place the previous month. Her work had also become “unbelievably stressful”. At the time, she didn’t fully realise how much pressure she was under, as she “just kept going” in fight or flight mode.
It was only later, when she began to do her own reading and research about stress illness, that she reconsidered what she had been through. By then, she had been living with chronic pain for almost a year. She had been prescribed antidepressants and painkillers, and told that many people live with pain, and she should just get on with it.
“I sort of became a shell of myself,” she said. “It was very much a lonely period of time. I didn’t know anyone else who was living with chronic pain.”
Then, alongside other treatments, Hannah started working with me. We talked about who she is as a person, and what her values and beliefs are. Consequently, she says, she has developed some urgently needed boundaries and it has given her the confidence and skills to put herself first. Understand herself and other people more, adding that this is work that will “protect her for the rest of her life”.
She now feels like her usual self, “give or take”. She is starting to return to the sports she used to love, including running, and is hoping to return to playing hockey in future. She is “in a very odd way”, grateful to her experience of chronic pain, as it has taught her a lot about herself including how to develop boundaries and protect herself. “It’s changed who I am completely,” she said. “But I do see that as a positive. It's been a very tough, steep learning curve.”